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A grandmother recounted the painful situation that she and the parents of her daughter had to face when receiving the diagnosis of cleft lip and palate through an ultrasound.
From the beginning of Ariel’s life, her granddaughter, Kim Madox became the primary caregiver. He learned to feed her with special bottles that had an extended nipple and reached down to the back of her throat.
As the formula spilled out of her nose and mouth, It was really very little food that reached the girl’s stomach and in an appointment with the pediatrician, he told them that Ariel did not gain weight and that she was going to die.
According to the testimony of the woman outlined in MSN, the doctors weighed Ariel and assured her that she was not dying, in fact, the doctor told them that they were doing everything right, but that they had to increase the frequency of their feeding times.
“I was very relieved, but that experience with the pediatrician showed me that I would have to be very active in Ariel’s care. Before that, I had tried to do some research, but I didn’t know where to start,” says Kim.
Her first surgery
Then a family friend recommended contacting the Ohio Shriners Hospital for Children. When the girl was 3 months old, she underwent her first surgery to correct her cleft lip.
After this operation, formula still came out of his nose when he ate, but it was a much smaller amount. Ariel regained her weight and the whole family returned to tranquility.
Currently , is a 4-year-old girl who loves to do things her age like telling stories, playing ball and swimming. He received many other surgeries that make it almost imperceptible that he has a cleft lip and palate.
“My My heart breaks for other parents and caregivers who are where I was in those early days: knowing they need help, but not knowing where to turn. Ariel and I now have a personalized support team at Shriners,” says Kim.
For his part, add a grain of sand by motivating other people who live this experience, especially so that they do not lose heart and trust that there is a way in which they can cope with this situation successfully.
“I tell other parents to remember what they are advocating for. Ariel empowered me. This is my grandson, my angel. No one is going to tell me if he lives or dies. If you give up on her, like that pediatrician did, it’s not worth having you around her”, ended.
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